Modifiable Variables in Parkinsonism (MVP)
Recruiting · NCT02194816 · Observational (researchers observe without assigning treatment) · Lead sponsor: Bastyr University
View the official record on ClinicalTrials.gov →What this trial is about
We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.
Who can take part
Age range
19 Years and older
Sex
All (male and female)
Healthy volunteers
No - a diagnosis or condition is required
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- Parkinson's disease (PD)
- Parkinsonism
- Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
- Must have online access, an email address, basic computer literacy
- Must be willing to complete online surveys every 6 months for 5 years
Exclusion criteria
- Inability to read/write English
- Inability or unwillingness to complete surveys every six (6) months (\~90 min)
Where it is running
1 location listed across 1 US state.
- Bastyr University - Kenmore, Washington, United States