Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Recruiting · NCT02249923 · Observational (researchers observe without assigning treatment) · Lead sponsor: New York Medical College
View the official record on ClinicalTrials.gov →What this trial is about
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Who can take part
Age range
1 Day to 21 Years
Sex
All (male and female)
Healthy volunteers
No - a diagnosis or condition is required
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- The subject's age of onset of pulmonary hypertension must be prior to age 18 years
- The person providing consent must be able to read either Spanish or English.
- The subject (and/or parent/legal guardian) must be able to provide informed consent
Exclusion criteria
- Diagnosed with pulmonary hypertension after age 18
- Refusal to sign informed consent
Where it is running
14 locations listed across 11 US states.
- Stanford University Medical Center - Palo Alto, California, United States
- University California San Francisco - San Francisco, California, United States
- Children's Hospital Colorado - Aurora, Colorado, United States
- Johns Hopkins All Children's Heart Institute - St. Petersburg, Florida, United States
- Johns Hopkins Children's Center - Baltimore, Maryland, United States
- Boston Children's Hospital - Boston, Massachusetts, United States
- Columbia University Medical Center - New York, New York, United States
- Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center - New York, New York, United States
- Cincinnati Children's Hospital Medical Center - Cincinnati, Ohio, United States
- Children's Hospital of Philadelphia - Philadelphia, Pennsylvania, United States
- Vanderbilt University Medical Center - Nashville, Tennessee, United States
- Texas Children's - Houston, Texas, United States
- Seattle Children's Hospital - Seattle, Washington, United States
- University of Alberta Edmonton - Edmonton, Alberta, Canada