Registration Study for Rare Type of Pulmonary Hypertension
Recruiting · NCT03169010 · Observational (researchers observe without assigning treatment) · Lead sponsor: China National Center for Cardiovascular Diseases
View the official record on ClinicalTrials.gov →Interventions studied
Genetic analysislaboratory biomarker analysis
What this trial is about
The knowledge on the rare type of pulmonary hypertension which can not be explained by left heart disease, respiratory disease or congenital heart disease is very limited. Investigators aim to setup a national registration study for the rare type of pulmonary hypertension, to understand the natural history, survival, progression, genetic and environmental contributions to disease.
Who can take part
Age range
No age limits stated
Sex
All (male and female)
Healthy volunteers
Yes - healthy volunteers may be accepted
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- Participant is willing and able to give informed consent for participation in the study.
- Patients diagnosed as idiopathic pulmonary artery hypertension, hereditary pulmonary artery hypertension, hereditary hemorrhagic telangiectasia associated pulmonary artery hypertension, pulmonary veno-occlusive disease, pulmonary capillary hemangiomatosis associated pulmonary artery hypertension, cavernous transformation of portal vein associated pulmonary artery hypertension, special type of congenital heart disease associated pulmonary artery hypertension, chronic thromboembolism pulmonary hypertension.
- All patients should have undergone right heart catheterization, diagnosed according to the guideline.
Exclusion criteria
- The participant may not enter the study if ANY of the following apply:
- Patients unwilling or unable to provide written consent for participation in the study.
- Not suffering from the rare type of pulmonary artery hypertension;
- Inclusion criteria-Controls
- Participant is willing and able to give informed consent for participation in the study.
- Self-reported to be healthy
Where it is running
1 location listed.
- Chinese Academy of Medical Sciences Fuwai Hospital and Peking Union Medical College Hospital - Beijing, Beijing Municipality, China