Alpha-1 Research Registry
Recruiting · NCT04157049 · Observational (researchers observe without assigning treatment) · Lead sponsor: Alpha-1 Foundation
View the official record on ClinicalTrials.gov →What this trial is about
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
Who can take part
Age range
No age limits stated
Sex
All (male and female)
Healthy volunteers
No - a diagnosis or condition is required
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
- Alpha-1 carriers (PiMZ, PiMS etc.)
Exclusion criteria
- Failure to provide informed consent
- Normal healthy individuals (MM)
Where it is running
1 location listed across 1 US state.
- Alpha-1 Foundation - Coral Gables, Florida, United States