Histiocytic Disorder Follow-up Study
Recruiting · NCT05915208 · Observational (researchers observe without assigning treatment) · Lead sponsor: University of Alabama at Birmingham
View the official record on ClinicalTrials.gov →What this trial is about
The purpose of the study is to describe the burden of chronic health conditions, psychological dysfunction, chronic pain, healthcare utilization, worse health-related quality of life, overall mortality, and cause-specific mortality among individuals with histiocytic disorders
Who can take part
Age range
0 Years to 89 Years
Sex
All (male and female)
Healthy volunteers
No - a diagnosis or condition is required
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- diagnosis of histiocytic disorder at any age
- Langerhans cell histiocytosis,
- Erdheim-Chester disease,
- Rosai-Dorfman disease,
- Xanthogranuloma,
- Mixed histiocytosis
- Malignant histiocytosis (Histiocytic sarcoma, langerhans cell sarcoma, interdigitating cell sarcoma)
- Hemophagocytic lymphohistiocytosis
Exclusion criteria
- None
Where it is running
1 location listed across 1 US state.
- University of Alabama at Birmingham - Birmingham, Alabama, United States