ALS Research Collaborative
Recruiting · NCT06885918 · Observational (researchers observe without assigning treatment) · Lead sponsor: ALS Therapy Development Institute
View the official record on ClinicalTrials.gov →What this trial is about
The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.
Who can take part
Age range
18 Years and older
Sex
All (male and female)
Healthy volunteers
Yes - healthy volunteers may be accepted
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- 18 years of age or older
- Can communicate in written English
- Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation
Exclusion criteria
- Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.
Where it is running
1 location listed across 1 US state.
- ALS Therapy Development Institute - Watertown, Massachusetts, United States