Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions
Recruiting · NCT06989593 · Interventional (participants receive a specific treatment) · Lead sponsor: Sarah Schlegel
View the official record on ClinicalTrials.gov →Interventions studied
What this trial is about
The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development and hypospadias). The main questions it aims to answer are: * Does guided journaling help to reduce anxiety levels in parents of children with urogenital conditions? * What are parents' perspectives on group-based writing interventions for future support programs? Participants will: * Complete a short anxiety questionnaire (the General Anxiety Disorder-7 scale) at the beginning of the study * Receive a physical journal with 5 writing prompts designed to help process emotions related to their child's condition * Complete 5 journal entries over several weeks, writing about their experiences and feelings * Complete the same anxiety questionnaire again after finishing the journal entries * Participate in a 45-minute interview to discuss how the journaling affected their stress levels and gather feedback on potential group-based writing programs
Who can take part
Inclusion criteria
- Parent or legal guardian of a child (age 0-17 years) diagnosed with a urogenital condition (such as differences of sex development or hypospadias)
- Able to read and understand English
- Willing to complete a guided journaling intervention (through writing or dictation) over a period of approximately 5 weeks
- Willing to participate in a 45 minute follow-up interview
- Able to provide informed consent
Exclusion criteria
- Parent/guardian with severe psychiatric disorder that would interfere with participation as determined by referring physician
- Parent/guardian unable to complete either written journaling activities or dictation
- Inability to provide informed consent
Where it is running
1 location listed across 1 US state.
- Boston Children's Hospital - Boston, Massachusetts, United States