Clinical trials recruiting for Von Hippel-Lindau Disease
6
Recruiting trials
11
US states with sites
24
Countries
33%
Accept healthy volunteers
Phase breakdown
Phase 2 2Not applicable 4
Drugs and treatments being studied
| Intervention | Trials |
|---|---|
| 68-Gallium DOTATATE | 1 |
| Belzutifan | 1 |
Where trials are recruiting (top US states)
| State | Recruiting trials |
|---|---|
| Maryland | 2 |
| Tennessee | 2 |
| California | 1 |
| Illinois | 1 |
| Iowa | 1 |
| Massachusetts | 1 |
| Michigan | 1 |
| Missouri | 1 |
| New York | 1 |
| Pennsylvania | 1 |
| Texas | 1 |
Top cities
Bethesda, Maryland 2Ann Arbor, Michigan 1Baltimore, Maryland 1Boston, Massachusetts 1Chicago, Illinois 1Houston, Texas 1Iowa City, Iowa 1Los Angeles, California 1Memphis, Tennessee 1Nashville, Tennessee 1
Self-screener
Recruiting trials
- 18F-T2 PET/CT Imaging for CAIX Positive Solid Tumors
- Belzutifan/MK-6482 for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), Von Hippel-Lindau (VHL) Disease-Associated Tumors, Advanced Gastrointestinal Stromal Tumor (wt GIST), or Solid Tumors With HIF-2α Related Genetic Alterations (MK-6482-015)
- Familial Investigations of Childhood Cancer Predisposition
- Genetic Bases of Neuroendocrine Neoplasms in Mexican Patients
- Institutional Registry of Rare Diseases
- Natural History and Management of Von Hippel-Lindau (VHL) Associated Pancreatic Neuroendocrine Tumors
Related conditions
Trials recruiting for Von Hippel-Lindau Disease often also study these conditions. Each links to its own recruiting-trial list.
Pancreatic cancer 870Colorectal cancer 1359Tuberous Sclerosis 10Pheochromocytoma/Paraganglioma 3Pheochromocytoma 5Paraganglioma 5Multiple sclerosis 445Multiple Endocrine Neoplasia Type 2 3Multiple Endocrine Neoplasia Type 1 4Lynch Syndrome 28
Common questions
Are these trials free to join?
Study-related care in a clinical trial is usually provided at no cost to participants, and some trials reimburse travel. Costs vary by study - the trial team will explain what is and is not covered. Confirm this directly with them.
How do I know if I am eligible for Von Hippel-Lindau Disease trials?
Each trial lists inclusion and exclusion criteria. The screener above checks stated age and sex only. The full eligibility (your medical history, current medications, test results) is assessed by the study team. Open any trial to read its criteria, then contact the site.
Is this list complete?
No. For the full list, search ClinicalTrials.gov.