Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
Recruiting · NCT01793168 · Observational (researchers observe without assigning treatment) · Lead sponsor: Sanford Health
View the official record on ClinicalTrials.gov →What this trial is about
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.
Who can take part
Inclusion criteria
- Diagnosis of a rare disease, a disease of unknown prevalence, undiagnosed or an unaffected carrier of a rare/uncommon disease
Exclusion criteria
- Diagnosis of a disease which is not rare
Where it is running
8 locations listed across 1 US state.
- Sanford Health - Sioux Falls, South Dakota, United States
- Sanford Health - Sioux Falls, South Dakota, United States
- Sanford Health - Sioux Falls, South Dakota, United States
- Sanford Health - Sioux Falls, South Dakota, United States
- Online Patient Enrollment System - Sydney, Australia
- Online Patient Enrollment System - Sydney, Australia
- Online Patient Enrollment System - Sydney, Australia
- Online Patient Enrollment System - Sydney, Australia