Rare AutoImmune SElf-management Programme Development
Recruiting · NCT06642870 · Observational (researchers observe without assigning treatment) · Lead sponsor: University of the West of England
View the official record on ClinicalTrials.gov →Interventions studied
Non-interventional study
What this trial is about
The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.
Who can take part
Age range
18 Years and older
Sex
All (male and female)
Healthy volunteers
No - a diagnosis or condition is required
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
- Diagnosis of a rare rheumatic condition made by hospital doctor or secondary care: including lupus, systemic vasculitis, myositis, Sjogren syndrome (participant self-report)
- Ability to give informed consent (with translation support if needed)
Where it is running
1 location listed.
- University of the West of England/ Bristol Royal Infirmary - Bristol, United Kingdom