Transition From Pediatric to Adult Epilepsy Care
Recruiting · NCT06778772 · Observational (researchers observe without assigning treatment) · Lead sponsor: IRCCS National Neurological Institute "C. Mondino" Foundation
View the official record on ClinicalTrials.gov →Interventions studied
transition pathway to adult care services for epilepsy patients.
What this trial is about
The goal of this observational study is to assess the preparation of the caregiver and the patient for the transition, by comparing the results of the Transition Readiness Assessment (TRAQ) questionnaire at the time of the last pediatric neuropsychiatric visit, which is then repeated at the first adult epilepsy neurology visit. The assessments will be conducted at the last evaluation at the pediatric epilepsy service and repeated at the first visit to the adult epilepsy service.
Who can take part
Age range
17 Years to 18 Years
Sex
All (male and female)
Healthy volunteers
No - a diagnosis or condition is required
Phase
Not specified
Study type
Observational (researchers observe without assigning treatment)
Inclusion criteria
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- Patients aged 17 or 18 years.
- Diagnosed with focal or generalized epilepsy, regardless of etiology and neuropsychological, neuropsychiatric, or internal comorbidities.
- Those for whom continued epileptology follow-up is required according to standard care guidelines.
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Exclusion criteria
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- Patients undergoing EEG only for the detection of EEG abnormalities without a diagnosis of epilepsy.
- Patients for whom the last neuropsychiatric evaluation does not recommend continued epileptology follow-up (patients considered "cured" from epilepsy according to ILAE guidelines).
Where it is running
1 location listed.
- Child Neuropsichiatry - Pavia, Italy